Transform Your Dementia Care Journey with the
CareBrains Roadmap to Getting the Best Care
Uncover the most comprehensive step-by-step roadmap to getting the best dementia care, and see the myths debunked that will change what you do today.
Summary of the
CareBrains Caregiver Program:
Mastering the Dementia Care Journey
Milestone 1 Connoisseur
See the full journey, where you are now, how to go forward
1 Decipher Dementia
First, we help you decipher the dementia world, understand it from your loved one's perspective and the science of how the disease progresses, and prepare for those changes.
2 Assess Situation
We will then help you figure out where you are on the dementia care journey, by assessing your current situation with our proven CareBrains assessment and determine the most appropriate care options.
3 Line Up Legal
The next priority is to line up the legal documents to uncover and fulfill the desires of your loved ones. These include powers of attorney and other forms. We will go over what you need, why you need them, and how to use them.
Milestone 2 Brainiac
Outsmart
Challenging Situations
4 Get Financing
We will cover how you can optimize financing and get care paid for as much as possible. This includes how Medicare/Medicaid and long-term insurance work, and payments you can expect.
5 Create Action Plan
Once you have the foundational knowledge for navigating the dementia journey, we will go over how to set up an action plan so you can get the care services needed based on the disease progression.
6 Communicate
Now that you have an action plan and know which care services would be appropriate, e.g. if home is no longer safe, and moving to a care facility is needed, you'll need to communicate effectively to coordinate care among your loved one, family members, and the care teams. This is one of the most challenging steps, which is to get everyone on the same page and share the responsibilities of doing what's best for your loved one.
Milestone 3 Mastery
Get the Best
Dementia Care
7 Get Service
To help you get the care services, we will go over each care option, the requirements, related costs, the application process, the waitlist, etc. We will also cover tips to evaluate and apply for them.
8 Navigate
Now that you have a pathway forward, as the disease progresses, hospitalization events are likely. This step helps you prepare to navigate hospital crisis events, coordinate with hospital staff and care teams.
9 Monitor
Lastly, conditions will always change. Know what to look for so you can monitor and adapt the action plan when changes are needed.
Curriculum
Fully understand dementia from the patient's perspective. Understand the science behind how different types of dementia progress, and why you need to know in order to plan for appropriate care.
1: What is dementia
-
Defining dementia
-
Brain & functions
-
Normal VS dementia brain
-
Normal VS brain with Alzheimer’s Disease
2: Warning signs - how do you know if it’s dementia
-
Normal aging
-
Warning signs that something is not right
-
Why do you need to care about delirium
-
What causes delirium
-
Delirium compared to dementia
-
Story Time: Sandwich Guy
-
Moving from delirium to dementia
-
Dementia warning signs
-
What do you do if you think it’s dementia?
3: Dementing diseases
-
Defining the Dementing Diseases
-
Alzheimer's Disease
-
Vascular Dementia
-
Lewy Body Dementia
-
Story Time: Robin Williams
-
Parkinson's Disease Dementia
-
Frontotemporal Dementia (Pick's Disease)
-
Story Time: Misdiagnoses caused prison-time
-
Wernicke-Korsakoff Syndrome
-
Mixed Dementia
-
Chronic Traumatic Encephalopathy (CTE)
-
Dementing diseases & other medical conditions
-
What to do when the family says “do everything”
4: Ways to manage the brain
-
How to protect your brain
-
Slowing down the disease progression
-
Evidence-based ways to entertain the dementia brain
-
Story Time: Folding laundry
FAQs
-
Sudden confusion case study
Checklist: Warning signs for dementia
To-do
-
Assess your current situation so you can prepare for what to do.
1: Why do you need to know the current situation
-
Why is knowing your current situation important?
-
Where do you think you are?
-
Where do you want to be?
-
Story Time: Dementia staging myths
2: Fill out the CareBrains assessment
-
CareBrains Assessment
-
Assessment sections
-
Fill out the assessment together
-
What do the results mean?
-
How do you know when it is time to make a move to another care setting?
-
Story Time: Enough is enough
3: Care options
-
Types of care providers
-
Home care
-
Home health care
-
Assisted living
-
Memory care
-
Story Time: Young onset Alzheimer’s
-
Acute rehab
-
Subacute rehab
-
Long term care/snf/nursing home
-
CCRC/lifecare community
-
Active adult community
-
Independent living
-
Story Time: Hip replacement
FAQs
-
How do I know something needs to change?
-
What do you do next when you are aware something needs to change?
-
My loved one wants to go home, but I don’t think that’s the best option
-
Home care or assisted living?
Checklist: Care Facility Evaluation
To-do: Identify appropriate care options
-
Go through the importance of lining up legal documents first, so that you have the authority to setup the planning actions and get funding for care needs.
1: Why you need the legal documents
-
Why you need the legal documents first?
-
Story Time: When the legal documents were not done correctly
-
Story Time: Who can pay for care
2: What legal documents are needed
-
Legal documents
-
Will
-
Health care proxy / Healthcare Power of Attorney
-
Durable Power of Attorney
-
Advanced directive
-
MOLST/POST/POLST
3: What do you do with the legal documents once you have them
-
Store them
-
Communicate them
-
Story Time: Brain dead & no documents
4: Legal scenarios
-
POA not available
-
Planning for spouses
-
Having the conversation about “quality of life”
FAQs
-
What’s a will vs living trust vs estate planning
-
Do I need to be high net worth to make estate planning worthwhile?
-
How much does it cost? Do I really need a lawyer?
-
When do I go to a lawyer vs a financial advisor?
-
What if I already have a financial advisor and did all these? Do I need to revisit?
Checklist
To-do
-
1: Budget for care services
-
Considerations
-
Types and costs
-
Case study: Frontotemporal dementia (FTD)
-
Case study: Dementia with Parkinsonism
-
Case study: Early onset Alzheimer’s
-
Stories
2: Financing options-
Medicare/Medicaid
-
Long-term care
-
Savings and assets
-
Proceeds from selling a home
-
Bridge loan
-
Veteran’s benefits
-
Selling or borrowing against a life insurance policy
-
Government programs
3 Aid services-
Social security compassionate allowance
-
Veterans Aid and Attendance
-
Government programs
-
Stories
FAQs-
What if I don’t have a financial advisor?
-
How do I know if my financial advisor can help?
Checklist-
Optimizing your finances
To-do-
Work with your financial advisor
-
Make sure your lawyer and financial advisor are working together
-
1. Components of the action plan
-
Why an action plan at this stage?
-
Categories to consider
-
Care options
-
Financing
-
Legal
-
Others
-
-
Planning for different scenarios
-
What are the likely scenarios:
-
Short-term
-
Mid-term
-
Long-term
-
Likely scenarios to prepare for: hospitalization, financial changes
-
-
2. Barriers to creating a plan
-
Denial
-
Promises
3. Action plan for care planning
-
Does a loved one have dementia?
-
If so, which disease(s) and stage?
-
Expected trajectory and timeframe
-
Get legal documents
-
Setup financing
-
If not, line up legal and finance, then get a diagnosis
-
-
Create binder/folder/e-documents with legal, financial, MOLST forms
-
Find the appropriate care
-
Apply for the care
-
Get ready to move
-
Prepared to talk with family members and professionals who make up care team
4. Action plan for your loved one
-
At home:
-
Activities of daily living
-
IADL
-
Loneliness
-
Meaningful engagement
-
Emergency plan
-
Monitoring methods
-
-
If loved one needs to move:
-
At the new location, also make sure to address the above
-
FAQs
Checklist
To-do: Fill out the action plan
-
1. Why communications is the biggest challenge in dementia care journey
-
Who you need to communicate with
-
Why is it hard
-
Challenges
2. Strategies to communicate and understand your loved one
-
Communication barriers
-
Communication tips
-
Dementia interpreter
-
Story Time: Understanding “word salad”
3. Strategies to communicate with the care teams
-
Strategy overview / the how
-
Determine who needs to know what (honestly)
-
Share the facts
-
Communicate known roles and responsibilities
-
Go over action plan
-
Go over shared responsibilities, who is doing what when
-
Update the action plan with care team member tasks and keep appropriate people updated
-
-
How to resolve disagreements among the professional care team
4. Strategies to communicate with family members
-
Strategy overview / the how
-
Establish in your mind the order of topics
-
Establish that you are knowledgeable in this area of caring for your loved one, by briefing on the topics
-
Establish roles and responsibilities and are these appropriate
-
Go over action plan
-
Go over shared responsibilities
-
Update the action plan accordingly
-
-
How to resolve disagreements among family members
-
When do I need outside professional help
FAQs
To-do: Update your action plan accordingly
-
Know your options for a variety of services.
1. Service options
-
May options both paid/free are available
2. Assisted living
-
How to evaluate
-
Qualifications
-
Costs
3. Memory care
-
How to evaluate
-
Qualifications
-
Costs
4. Home care
-
How to evaluate
-
Qualifications
-
Costs
5. CCRC/Life care communities
-
How to evaluate
-
Qualifications
-
Costs
6. Senior housing
-
How to evaluate
-
Qualifications
-
Costsentify appropriate care options
-
1. Signs to call an ambulance
-
Stroke signs
-
Falls
-
Altered mental status
2. What to do while waiting for the ambulance-
Pack a go-bag
-
Pack the “binder”
3. What to tell the health teams-
The ER team
-
The admit personnel
-
Magic words to say
-
Know the difference between “observation” and “admit”
4. During hospital stay-
What to say
-
What to show
-
What to look out for
-
Start preparing for the discharge
-
Checklist
5. Before leaving the hospital (discharge)-
Why this matters the most?
-
Considerations
-
Options
-
Checklist
To-do-
Have go-bag prepared
-
Have documents prepared
-
1. When to change the plan
-
Triggers for re-assessment of the loved one
-
Something looks different or wrong (the disease doesn’t seem to progress as expected – is the diagnosis wrong?)
-
Safety concerns
-
Change in behavior
-
Is it delirium?
-
-
Story: progressing disease
2. Planning for different scenarios
-
What are the likely scenarios:
-
Short-term
-
Mid-term
-
Long-term
-
-
Legal
-
Financial
-
People changes
-
Professional caregiver
-
Hospitalization
3. How to change the plan
-
Re-assess:
-
CareBrains assessment
-
Re-do detailed cognitive assessment
-
Scenario updates
-
Re-assess financial
-
Re-assess legal
-
-
Review earlier steps
FAQs
To-do: Update your plan accordingly
-
Jodi Lyons is a senior care expert, author, and industry advisor on caring for brain health, including dementia care.
Ting Shih is an award-winning serial entrepreneur specialized in scaling healthcare expertise through technologies to improve healthcare worldwide.
The need for dementia care is growing exponentially, and we need to empower family caregivers and professionals to be prepared for the full journey of dementia care, including hospital crisis events. So we joined forces and distilled 20+ years of knowledge and experience into the CareBrains caregivers program: Mastering the Dementia Journey.
Jodi Lyons
Jodi is an eldercare expert who helps older adults and those with special needs find the care they need nationwide. An ardent patient advocate, Jodi helps people navigate the complicated, often convoluted system, identify what they need, and learn how to create an action plan. With 20+ years of experience in the nonprofit healthcare arena, Jodi has been a leader in national and international organizations representing healthcare and long-term care service providers.
She is a former executive committee member of the Alzheimer’s Association National Capital Area. She is a co-author of the award-winning book, Brain Health As You Age (Rowman and Littlefield 2018), was a contributor and industry advisor to Telemedicine Magazine, a contributor to Startup Health Magazine. She is a graduate of Brandeis University in Waltham, MA and a former president of the Washington, D.C. area alumni association.
Ting Shih
Ting Shih is the CEO and founder of ClickMedix, an award-winning AI-powered healthcare technology social enterprise born out of MIT with the mission of improving the health of over 1 billion people using mobile technologies. She spent more than 10 years implementing mobile health programs across Africa, Asia, South America, and North America to enable healthcare to be delivered to anyone regardless of income-level, gender or age through telemedicine, AI, and health workers, to connect patients to world-class medical experts. ClickMedix is deployed in 25 countries, and serves 2 million+ people worldwide. In 2022, ClickMedix was inducted as Million Lives Collective Vanguard member. Ting has worked with health systems, payors, governments, research institutions, and private corporations to reduce costs of healthcare systematically, while reaching more underserved patients.
Ting is World Summit Awards winner (2019), Asian American Chamber of Commerce Young Professional of the Year (2018), Geneva Forum for Health Award (2016), winner of USAID / DAI Innovation into Action Challenge in 2016, Toyota Mother of Invention in 2015, and she is the Cartier Women’s Initiative Laureate 2012 for North America. She holds an MBA and MS in Systems Engineering from MIT. In addition, she has a BS in Computer Science and MS in Software Design and Management from Carnegie Mellon University.
Meet Your Instructors
Who This Course Is For
-
You want a proven step-by-step process and clear pathway for dementia care, knowing where you are, what resources you have available, and being able to competently handle crisis events.
-
You're willing to put in some work! This program works when you do. If you plan to invest in the program and get to it whenever you get to it, then social media is a better place to procrastinate.
-
You want to know with certainty that you're doing the right things to get the best care for your loved one.
-
If you value being able to understand a complex and heart-breaking disease by implementing chronological step-by-step action items then this is the ultimate course for you.
Who This Course Is NOT For
-
You are looking for the day-to-day help on activities of daily living (bathing, toileting, eating, etc.). However, you can access our expert answering services, where we provide answers to your specific needs based on decades of experience.
-
You are looking for a quick fix where you put in little to no work.
-
You do not care about speed or certainty and rather spend time searching for answers. This program is developed for people who want to know how to navigate dementia care in the fastest timeframe possible. There are other programs for those of you who have an abundant amount of time and no real need to move quickly or with proven methods.
READY TO START?
Get the discount before the offer ends.
Start Mastering the Dementia Care Journey Today!
Every plan comes with a 14-day money back guarantee.
Starter
$98/course
Pay as you go
($100 off)
Start with Step 1: Decipher the Dementia World. You can purchase subsequent courses after the first one.
Get answers from expert-led community
Fast-track getting care services with fillable online forms.
Learn from Real-life case studies / stories
Implement each step with ease using assessments and checklists
Stay on track with to-do list management tool
$198
For caregivers who want to know what to do now and how to choose appropriate care options.
Mastery
$1782
$582
All-access 9-course program ($1200 off)
All 9 Courses
Steps 1-9 take you from knowing your current situation to financing for care, to handling crisis. Then onto getting the best care services and learning to monitor & adapt as the disease progresses.
Get answers from expert-led community
Fast-track getting care services with fillable online forms.
Learn from Real-life case studies / stories
Implement each step with ease using assessments and checklists
Stay on track with to-do list management tool
For caregivers who want to be prepared to address all aspects of dementia care: medical, financial, and legal challenges.
Done-With-You
For caregivers dealing with urgent crisis (e.g. hospitalization) & need FAST, hands-on support to get appropriate care (e.g. memory care, rehab, etc.)
Contact Us
All 9 courses + dedicated dementia care expert to navigate the dementia care journey FAST.
1:1 sessions with dementia expert to generate and implement tailored action plan
Crisis resolution with hospitals, care facilities, families, and care teams.
Successful care facility applications and document management (medical records, financial and legal paperwork) usually bypassing waitlists
Financing options review reducing costs significantly
Access to community
Frequently Asked Questions
Who are the dementia experts?
All of our dementia experts have at least 20 years of hands-on experience caring for dementia patients. They are registered nurses, long-term care facility administrators, professional caregivers, etc. Our full team consists of a culmination of more than 100 years of experience, hand-holding thousands of family caregivers and their loved ones through this challenging care journey. We have seen it all and know what to do, or will figure out what to do for your particular situation. You are further supported by our extensive network of care providers including world class neurologists, specialists, care facilities, etc. Whatever your needs are, our dementia experts will help you get the best care.
Can't I learn this online and through various other free resources?
There are plenty of online resources and some with free content and tutorials. But it will be up to you to spend time to learn them, search for information to address your specific issues, and oftentimes, finding only partial answers, or answers you are not sure would work for you. Particularly for dementia care, exactly when and what actions to take, and in what sequence can critically affect care.
This program will save you months, and even years of frustrated time searching for answers, taking actions out of sequence, and delaying getting the best care for your loved one, as well as potentially costing you a lot more money when it's too late.
If you want to see your care journey in full, and into the future of what to expect, FAST, then the CareBrains mastery program is for you. Plus, what is your time worth? And what is the worth of knowing you are doing the right thing for your loved one?
How long do I have access to the program and when does it start?
Access is lifetime. You will have instant access to the program after purchasing.
Can I buy specific courses, and skip step 1?
The program is designed to be sequential and knowledge from the previous step is needed for the subsequent step. If you have an urgent need for specific steps, e.g. Handle Hospital Crisis, you can purchase the all-access Mastery Program to see all the steps/courses. You can also contact us (carebrains@clickmedix.com) and we can review the fastest ways to help you.
If I choose the Starter package and buy just one course, how do I buy more courses?
After buying the first course, you'll have an account (login & password) to access the CareBrains learning system, where you can buy additional courses.
After I buy the first course, what if I change my mind and want to buy the full 9-courses?
We will only charge you the difference between what you paid and the full 9-courses. For example, if you bought 1 course at $98, and want to buy the full 9-courses at $582, then you'll pay $582-98 = $486.
Is there a guarantee?
Yes! We have a 14-day satisfaction guarantee. If for any reason, you have started the course, and you still do not find the program helpful, then simply contact us within 14 days from date of purchase for a full refund.
14 DAYS
MONEY BACK GUARANTEE
Included in the Program
The most complete and easy-to-use roadmap to getting the best dementia care
Expert-led community, where you can get answers from dementia experts who have gone through the care journey thousands of times
Applicable case studies / family caregiver stories you can learn from
Value-packed video tutorials
Checklists, guides, and fillable forms so you can easily implement relevant steps
Latest research, clinical trials, and innovations with continual updates